mercoledì 13 luglio 2011

Cool Things Happen To Cool People (Sometimes)

Sorry for the picture. Not cause it contains the word "fuck" (which is a beautiful word and sounds awesome), but because it might give you an idea that this is one of those "group hug" posts that a lot of bloggers out there do. And i aint like that.

It's just a good moment, alothough not for me, but i'm made in a weird way, so i enjoy when something great happens to someone i love much more than when it happens to me.

Anyway, lately, as you could imagine, things havent been good. They still arent. Shit is still hitting the fan. Yet i learned from my princess Rhian, who's been fighting down to the skin of her teeth with the beastly sickness called lupus (an illness that affects a disturbing amount of people and is brutally ignored by media and people alike) that good and quite BIG news are on the horizon: Canada (making a move that will soon be followed by other countries).

Quote from This Article

"For the first time in almost 50 years Canadians living with lupus have a new treatment option. Health Canada has approved BENLYSTATM (belimumab), a new drug specific for the treatment of systemic lupus erythematosus (SLE, or simply lupus). The announcement was made today by GlaxoSmithKline Inc. (GSK) and Human Genome Sciences (HGS) who are developing BENLYSTATM under a co-development and co-commercialization agreement entered into in 2006. BENLYSTATM is expected to become available to patients in Canada in September of this year"

Now before you go all snarky about it, because you think attention should be given to "more important" issues, like the always popular AIDS or the oldie-but-goodie Cancer, remember that this is actually a sign that somewher, somehow things are moving forward. It means that in some way, the system has chosen to try something new and try to fight, instead of giving up on ill people and simply giving them a bunch of palliative cures or ignoring them all the way. This is a step UP, it means there is hope for people fighting with an invisible and devastating illness but also for everyone who is fighting with any illness. It means things are, maybe, changing for GOOD.

Of course there will be hate and cynicism, even in front of that. talk of money, and the cost of research, talk of "my thing is the most important". Also the cost of the medicine will be prohibitive. But it's a step forward, it means there's a glimmer of hope and we have a reason to fight. Also against whoever is telling ill people and the ones who love them, that they should be silent or just give up. There is still hope, and with that hope, we will buttfuck you all until you bleed.


1 commento:

  1. I just wanted to add, as a fellow Lupie: Fuck Lupus